Funding for Kennedy-Brownback Prenatally and Postnatally Diagnosed Conditions Awareness Act

The National Down Syndrome Society (NDSS) and National Down Syndrome Congress (NDSC) commend the Maternal and Child Health Bureau (MCHB) of the U.S. Department of Health and Human Services (HHS) for providing funding to implement the Prenatally and Postnatally Diagnosed Conditions Awareness Act (also known as the Kennedy-Brownback bill in honor of the two Senators who originally championed it).The passage of this important legislation was an extremely high priority for NDSS and NDSC, the original sponsors of the bill in the Senate and the leadership of the Congressional Down Syndrome Caucus. After an extensive advocacy effort, including visits to Capitol Hill by individuals with Down syndrome and their families, the bill was signed into law by former President Bush on October 8, 2008. However, it did not come with any Congressional appropriations to enact the recommendations. Now, MCHB has dedicated $820,000 in funding for each of the next four years.

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